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Match DNA to trace parents, siblings, children ... even abroad
DNA ADOPTION NETWORKINGDouglas R. Chalke
Executive Director, Sunrise Adoption, North Vancouver, B.C.
With advances in computer technology and DNA science, it seemed likely that a way would be found for the far-flung children of China to find their birth families. That day seemed far off in the future. However that day is here now, and it has arrived 20 years before I expected it. A new kind of internet website provides the means for adopting parents of children adopted from China to discover if their child has a sibling, half-sibling, cousin or other relative adopted anywhere in the world. In addition, birth parents in China will be able to search for their biological child who has been adopted by a family living somewhere in the world. While China adoptions are the largest example of what is now possible, it applies to every adoption in the world today. I don't think it is an overstatement to say that this is the most startling development in the field of adoption information in the past 25 years.
There are two new kinds of sites in particular that seem useful to the adoption community. They are interesting because both kinds are the first of a new genre of websites. The first are DNA social networking sites; the second are primarily gene-decoding sites.
1. DNA Adoption Networking
DNA Adoption Networking is a part of a new internet service the New York Times has called Zygotic Social Networking. These networking services permit users to build a social network around shared genetic material. Similar to Facebook, users are able to post photos, update their profiles, blog, and send messages to each other. More importantly, for adoptive families they facilitate searches for relatives and allow members to compare genetic makeup.
Basically, you sign up with the service, do a cheek swab, send it in, and a portion of your genetic makeup gets compared to others on the databank. You or someone else (somewhere in the world) can then click on a map that shows a marker for every other member around the world who shares genetic markers found in your DNA profile.
Perhaps even more amazing is that the creators of these sites believe that we are only at the beginning of their abilities and usefulness. Experts believe that every new discovery in the field of genetics will provide the users with new information about their identities.
Who Would Use This Service?
A broad spectrum of the adoption community will be able to make use of these sites:
Not everyone involved in adoption will want to participate in this worldwide experiment in genealogical research. While most adopted children want to know who their biological parents are, this is not always true. However, for those who do want to know where their child is, or who their biological parent is, these websites are already producing results and matches. An ABC News video clip, which is accessed by a link on the GeneTree.com home page, includes an interview with an adopted adult who only knew his birth date and place, and subsequently found relatives in several parts of the world.
Since DNA Adoption Networking will essentially provide a worldwide adoption reunion registry, people should think carefully before registering. While anyone can use one of these sites, special precautions need to be taken when they are used by the adoption community. Some individuals may wish to obtain counselling before registering. Adoption Reunion Registries are located in most jurisdictions in North America and they frequently provide counselling to the parties both before and after a reunion.
What makes these sites so different from the sites described next is that no genetic information is given back to you (the participant).
2. DNA Gene Decoding Sites
The second type of service now on the web that will impact adoptions is the ability to decode your child's DNA. Adoptive families will find this site useful for many reasons. Your child's DNA is decoded, providing you with much valuable information. The experience is simultaneously unsettling, illuminating and empowering.
While these decoding sites provide the opportunity for DNA Adoption Networking, that seems to be a by-product of their main function, which is to decode your DNA. For the adoption world, services like this have extraordinary implications, including:
These websites will bring
great opportunities, but also great quandaries. We will no longer have the problem of not knowing, but instead
have the burden of whether we want to know in the first place. We will know whether our children are
predisposed to certain traits or talents, athletics, music or languages, and
we'll encourage them to pursue certain paths.
I have recently described these websites to clients, friends and
relatives. It is interesting how many
people have said, "But do you really want to know this information?". Clearly, some people would rather not know
and just let the future unfold.
Be careful what you wish for. By going down this road, you may be opening a Pandora's Box. In short, we are on the brink of scientific and technological breakthroughs that are going to change adoption in a way that has never happened before. Please consider the following:
Registering: A recent survey of adopting parents (by the China Adoptions DNA Project) found that while the adoption community is keenly interested in learning more about how a DNA database could benefit their children and families, the overwhelming majority of parents currently do not know enough about it or are not comfortable enough with what they do know to take the next step and join a database. I encourage adoptive families to spend time on the DNA websites listed at the end of this article. Review their DNA science lessons, read the FAQ's and watch the videos. You will learn a lot.
Of course, if you're only registered on one site, it reduces the possibility of matches. Perhaps all the members of the adoption triad in the world who want to share this information should register on only one of these sites , or on a site yet to be created specifically for the adoption community. In the future there will undoubtedly be more of these kinds of websites, and their usefulness will advance as science advances. If you do register with one of the websites listed below, let us know about your experience with it.
Websites to Visit
A. DNA ADOPTION NETWORKING SITES
The site is part of a worldwide genealogical and
genetic research project. Anyone who
joins is a participant in this project.
(Unfortunately, this information is not made clear on the website until
a registrant orders a DNA swab kit and is presented with a 6-page contract to
sign.) Parents who don't like the
trade-off of being part of a research project may want to pass on
registering. Others will be happy to be
part of a DNA research project that also provides the opportunity for free DNA
Adoption Networking. This site is
headquartered in Salt Lake City, Utah, which is already known as the largest
center of genealogical research in the world.
Clearly, they want to make it bigger.
The website has a "Facebook" aspect to it, except you are networking with people you share similar DNA with around the world instead of your chosen friends. Participants set their own level of privacy on this site. In other words, you can register your DNA and then set privacy parameters as to the disclosure of information and whether you want contact with other members of your extended family. Of course, in addition to privacy concerns, the idea of adoptive families around the world registering their DNA on a master database certainly has a "Big Brother" feel to it. As a result, this service may not appeal to everyone.
This site is part of www.ancestry.com
and allows you to use DNA to search for ancestors, clans and by surname
groups. www.ancestry.com is an established
genealogical research site also headquartered in Utah. It already has a user base of 15 million, of
which 3 million have posted their searchable family trees. It is the internet's largest family-history
archive. The test kit costs $149 to
$179, depending on how sophisticated you want the results to be.
This website claims to have the largest DNA databases in the field of Genetic Genealogy (178,000 records). Their website includes tutorials on the use of your DNA. It also has a DNA user's forum which has posts from adoptees who have had varying degrees of success at finding relatives. The tests cost $149 to $199.
Although this site is not yet operational as a registry, it does have interesting things to say. It is a site worth reading and thinking about the points raised there. In addition to searching for relatives, a second, equally important mission of the website, is to create a voluntary, anonymous DNA database that will provide information that could benefit all Asians of Chinese descent. The China Adoptions DNA project states numerous times on this website that it is not yet underway since it has no funding. It worries about the costs to parents and the cost of providing the service. Some adopting parents will want to wait and see if this adoption-oriented website becomes operational because of the additional safeguards that have been created for the adoption community.
B. DNA GENE DECODING SITES
This is a web-based service that helps you understand your DNA. Send in a sample of your child's saliva and see how the decoded genes indicate your child's future. This site is partly funded by Google. The cost for a DNA analysis is $999, and you will receive a report analyzing almost 600,000 DNA checkpoints.
At this time their service is only available in the USA, Europe and Canada, although it will expand in the future to other countries. In response to my question to this site as to whether adopting parents could use it to have the DNA decoded for a child proposed to them for adoption, the response was "Our service is not intended to be used for genetic screening purposes."
Douglas R. Chalke is executive director of Sunrise Adoption agency in North Vancouver, British Columbia.
©2008 Sunrise Family Services Society
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